Tin Soldiers Survey

Tin Soldiers Global is a non-profit organization with a mission to identify, diagnose, and connect people living with Fibrodysplasia Ossificans Progressiva (FOP) and other pediatric musculoskeletal conditions to pathways of care.

One way we achieve this is by educating healthcare professionals about FOP and other musculoskeletal conditions.

Aim: To understand referral and care pathways for FOP.

This survey consists of seven short questions and will take less than 2 minutes to complete.

First name

Last name

Have you ever suspected or diagnosed a patient with FOP?*

Yes

Would you feel comfortable diagnosing FOP?*

Yes

Would you feel comfortable managing someone with FOP?*

Yes

With your available resources, how would you diagnose a case of FOP?*

Clinical

Imaging

Genetics

Other laboratory work

Where would you refer a suspected or diagnosed case of FOP?*

Orthopaedics

Genetics

Endocrinology

Stay with Pediatric Rheumatology

Other

Do you have a center with recognized FOP expertise to whom you could refer? *

Yes

Which country are you practicing in?*

Tin Soldiers Global is a 501(c)3 tax-exempt non-profit organization in the US and a registered section 18A non-profit organisation in South Africa.

Donations made in these countries are tax-deductible

to the extent allowed by law.

GET PATIENT SUPPORT:

The International FOP Association:

https://www.ifopa.org

Find your closest National patient

support organisation here

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